It´s not easy to live with fibromyalgia, it is not easy.. Due to the fact that, like myself, have no knowledge about how you are going to feel when you wake up in the morning. One day there´s pain beyond belief and the next you can feel as if you are walking on clouds, no pain and a day full of activity. My day normally starts with about 20 minutes of trying to stretch out muscles and have them functioning normal again.. Then I have to pick up my little girl from her bed, and that can be a painful experience. After that it´s time to change her diper, and that is also a huge problem for me as my fingers normally are not working proper..Fortunately my daughter has learned already to be patient with her mum. After about half an hour it´s time to try out clothes and see if íts going to be a good day or a bad one. A bad day is a no tight clothes day. Then it´s breakfast time.. I can normally not eat breakfast due to stomach problems..also caused by my fibromyalgia. And then the day goes on..if I have the strength I will try to go out and do the shopping and also take out my kids. The worse thing about fibromyalgia is that one get so tired.. The pain can be so hard that nothing works and even if you have had a good nights sleep, you can wake up feeling as if you have never slept at all. It takes control over every little thing you like to do. One day I have all the strength I can ever use and the next day I have no strength at all.. Fibromyalgia takes all the good in you, and make you feel horrible if you do more then your body can take. I remember once I was at a dance, felt pretty good that evening and had no pain whatsoever.. The day after the dance I could not get out of bed, I had to call for help. I have also had to have home assistent, and help with almost everything some periods of my illness. It´s been so bad that I haven´t even been able to take my kids out to play. The weather is also a big problem for almost everyone with fibromyalgia.. For me that means that when there temperatures between 0-15 degrees celcius, I´m in severe pain. Those days, I can do hardly anything, and that means for me about 6 months a year. There is a few things that you, who dont have this illness can do.. 1) Remember that even if someone has fibromyalgia, it doesn´t mean you can see it.. We have no evidence on our bodies that prove our illness.. And too often we get to hear that we are lazy, and "How can you be ill, it doesn´t show".. Those words hurt. Because we have often had to fight a battle with our doctors to make them realize that we have fibromyalgia and prove it to far too many people. 2) Also think about that sometimes even a soft touch can hurt...So dont pat us on the back saying "you´ll get better!. It´s an illness that are there for life. 3) Dont put demands on us, cause what we can do today - we might not be able to do tomorrow.. This is a little about fibromyalgia and I will probably write more about it. Annelie Persson mpam platinum member 1859558